Distal Myopathy is a rare disease which is listed under the muscular dystrophy group of progressive genetic disorders. Distal Myopathy largely affects the muscles of the extremities – hands, feet, lower arms or lower legs.
Recently at Happy Feet Pedorthics we assisted a person with distal myopathy. The woman was born with the condition but it did not manifest itself until later in her life. She came in with a pair of Drew extra width and depth strap court shoes. They looked great except that on the right foot they were too short and were putting pressure on the toes. This had been noticed by the physiotherapist as the client worked through the physiotherapy program.
The advantage of the strap court as a shoe design is that that foot with the AFO can get into the shoe and they are great party shoes! The disadvantage of the strap court is that the style is not as supportive as a closed in shoe be it velcro or lace closing for the physiotherapy program and more extended walking. So the option here for the strap courts as the party shoes were a split fit – the right bigger than the left!
For the more supportive shoes the client selected Drew lace ups with the pedorthic modification of making the right long opening – which is the way allow for foot entry with the AFO!
The person’s broad aim with her condition was to stay out of a wheelchair for as long as possible. Both legs are weak, the right more so, hence the AFO for this leg. Specifically at present the aim to work on going up steps and also inclines. To be able to do both more easily would enable her to continue living in her home without changes at this time.
The client went on her way from Happy Feet Pedorthics impressed and delighted that a shoe can be altered for individual needs! This is what pedorthics is about – it is not just the shoe it is what you can do with the shoe!
Clare Nelson CP CM AU