Virginia came looking at Happy Feet Pedorthics for shoes which would not hurt her feet. Following the assessment and fitting and trying the first pair in Happy Feet Pedorthics recommended list Virginia said “I don’t feel like an ugly duckling.” Her Mum said “she is walking more straight.”
Virginia has triple A syndrome . So what is triple A syndrome? Triple A syndrome is a rare disease but it’s prevalence is unknown. The link http://ghr.nlm.nih.gov/condition/triple-a-syndrome gives the reader some understanding of the condition.
Triple A syndrome is an inherited condition characterized by three specific features:
- Addison disease, and
Achalasia is a disorder that affects the ability to move food through the esophagus, the tube that carries food from the throat to the stomach. It can lead to severe feeding difficulties and low blood sugar (hypoglycemia).
Addison disease, also known as primary adrenal insufficiency, is caused by abnormal function of the small hormone-producing glands on top of each kidney (adrenal glands). The main features of Addison disease include fatigue, loss of appetite, weight loss, low blood pressure, and darkening of the skin.
The third major feature of triple A syndrome is a reduced or absent ability to secrete tears (alacrima). Most people with triple A syndrome have all three of these features, although some have only two.
Many of the features of triple A syndrome are caused by dysfunction of the autonomic nervous system. This part of the nervous system controls involuntary body processes such as digestion, blood pressure, and body temperature. People with triple A syndrome often experience abnormal sweating, difficulty regulating blood pressure, unequal pupil size (anisocoria), and other signs and symptoms of autonomic nervous system dysfunction (dysautonomia).
People with this condition may have other neurological abnormalities, such as developmental delay, intellectual disability, speech problems (dysarthria), and a small head size (microcephaly). In addition, affected individuals commonly experience muscle weakness, movement problems, and nerve abnormalities in their extremities (peripheral neuropathy). Some develop optic atrophy, which is the degeneration (atrophy) of the nerves that carry information from the eyes to the brain. Many of the neurological symptoms of triple A syndrome worsen over time.
People with triple A syndrome frequently develop a thickening of the outer layer of skin (hyperkeratosis) on the palms of their hands and the soles of their feet. Other skin abnormalities may also be present in people with this condition.”
So for Virginia’s feet and the want for shoes which don’t hurt?
- Callous under the great toes on the plantar surface of her feet
- Her toes – red, rubbing, callous, sore
- Ankle instability – Virginia wears has worn an ankle brace to give her more feeling of support. With her new shoes this may not be necessary
The recommended pedorthic footwear from Happy Feet Pedorthics will
- have extra width and depth to accommodate
- the 30 mm of height for her toes and orthotic at the toe box area
- the ankle at the hindfoot to give more stability
- custom made orthoses providing cushioning to the plantar surface of the feet
- be modifiable to provide added comfort beyond the fit
- release of leather sections to allow more give
- extension and cushioning to straps to provide more comfort
- provide an opportunity for a range of choices in the wardrobe
Happy feet at Happy Feet Pedorthics!